If Joey were wearing a white coat with a stethoscope draped around his neck, you’d think he was the NICU supervising doctor. He enters Finn’s room and immediately checks the vitals. He requests information from the nurse like a true neonatologist. “When’s the last time he was cathed? How many cc’s of residual? How are his lipids? We’ve reduced the Fentanyl to .15; how’s he reacting to the reduced pain meds? Ashley, get his temp, please. Incision site looks good…” I love this man. What a protector!
We’ve seriously come to know Finn’s “hands-on check” procedures and testing as well as his nurse. We’re thankful the nurses and doctors allow us (encourage us) to do as much of his care on our own. We love caring for him and there’s a lot of satisfaction in physically watching his heart rate drop and steady as soon as Joey or I touch him. The connection between baby and parent is amazing…one I’m sure many of you can attest to.
We’ve learned to get excited about the simplest of victories:
- Head circumference decreased by .5 cm
- They tried to take him off pain meds cold turkey…he was NOT happy, so he’s back on them, but in low doses
- Increased his breast milk intake from 5 cc’s to 10
- He sucked on a pacifier today
- No residual pee in the catheter…his bladder is draining properly (Not in the clear, however. He may have the reverse problem: that his bladder won’t “shut.” We won’t know this until his one month urinalysis.”
- He’s regulating his temperature on his own without the bed warmer
If not for this terribly debilitating spinal defect, Finn would be the healthiest kid on the block. Either way, he is loved and celebrated.