Today Finn has been alive one week. Woohoo! Praise the Lord for life! March 5th is also my dad’s birthday, Papa Mike. Two very brave, unique men.
A week ago today, we were scared out of our minds. Afraid of the unknown, of wheelchairs, catheters and foot casts. Now a likely reality, these scary things feel more like a nuisance than a disaster. We are sad and disappointed, but not miserable. “Struck down but not destroyed” 2 Cor. 4:9.
A week ago today we knew well our love for each other but didn’t know the inexplicable love for a child.
A week ago today we hadn’t fully experienced the strength and support that community brings. Our close friends and family have been our rock. It’s the way we feel God’s love most tangibly these days. We’ve also experienced encouragement even from strangers…also some odd stories and unhelpful feedback, but mostly encouragement.
A week ago today our families were missing one important person. One member of the family who will bring a unique perspective, perhaps some tenacity and relentless strength.
A Quick Update:
- Finn is FUSSY today! They are weaning him off pain meds and he’s acting more like a typical baby.
- When he feels a jolt of pain, he makes his fists into a tight ball, gathering all the strength he can. To provide some comfort, we have him hold Joey’s finger in one fist and mine in the other. When the pain comes, he grips us tightly in unison.
- Two good neurological signs: he’s showing signs of hunger as we feed him more breast milk, and he’s got a great sucking reflex (on the pacifier and the doctor’s finger). They won’t let him come to the breast yet. Boo.
- Head circumference is down another .5 cm.
- All stitches and lesions are healing well.
Please keep praying for pressure to release from the brain, that brain matter has room to expand and make him smart, and that he keeps digesting all the breast milk so they’ll let me breast feed. We still need to cast his feet, circumcise him and get him to comfortably lie on his back before they’ll let us go home.