2:45am is not the ideal time to make important parenting decisions.
Finn woke every 30-45 minutes last night, crying inconsolably and sounding like he was in pain. He’s had a cold for about two weeks. I took him to the doctor on Tuesday after a sleepless night, thinking he had an ear infection. However, I was told it was just bad congestion and a sore throat. Tough it out, momma.
But last night was too much. We got that gut feeling that something was not right. This screaming, red-faced baby wasn’t our Finn. So we packed up and headed to Children’s Hospital ER, concerned this was a shunt malfunction issue. Many babies with Spina Bifida need a shunt revision within their first year.
The doctors were concerned by the irritability, severe congestion and the turning in of his right eye (this has been happening for about three months…going to the eye doctor Tuesday). They assumed shunt malfunction and sent Finn off for a CT scan, X-rays and virus tests. Finn was naked except for his starry Target brand size 3 diaper…I realized I don’t get to see his bare skin often enough. It’s beautiful. And smells yummy.
A few hours of exhaustive waiting and some warranted crankiness passed. We were prepared for Finn to be admitted and to have a shunt revision by Monday. As we were discussing the unfortunate timing of all this (plans to meet out-of-town friends for breakfast, OU/Baylor game we actually had tickets for, Joey’s staff retreat, and my studio’s preview event), the doctor pulled back the cartooned curtain and said, “CT scan looks perfect. Even better than last time!”
Finn’s brain ventricles have decreased even more (less swelling), and that corpus collosum that was “missing” back in June is most certainly there! MIRACLE. See my Give and Take post for those details. No shunt malfunction.
So they’re treating him for a severe cold and a suspected ear infection. There was too much wax buildup in his tiny ears and they couldn’t see the eardrum to confirm. The sinus pressure in his head may be bothering his shunt, but it’s still working.
He’s been crying all day off and on, but in those moments when he forgets he’s in pain and he flashes his grin we are reminded he’s still our little fighter. Just an exhausted one with pain he can’t communicate.
Thankful today for friends who take good care of us, a properly functioning shunt and doctors who can determine thus. Oh, and a missing brain part is found! Amen!