Finn began showing signs of shunt malfunction when he woke up from his nap yesterday afternoon. I took him to the dr to rule out infection because his nose is really plugged. Last night he got worse and cried every two hours. He digressed much quicker this time than last time. He was hanging his head backward early this morning–the only position in which he could find relief.
I can’t begin to relay to you the misery that comes with watching your child suffer and not being able to do anything…unless you’ve been there yourself. This was the worst we’d ever seen him. He threw up on the way to the ER, went completely limp and toward the end of today he was even unresponsive when they’d pry his eyes open. They were shouting his name to keep him alert; heart rate and blood pressure all over the grid. We just watched through tears. We asked how “unresponsive” does he have to get before this is considered a true emergency? They said when he stops breathing. Have you ever waited for your child to stop breathing? Well, it’s maddening.
He is finally out of surgery. There was 100% blockage in the brain catheter. All went well…we’re just hoping this one lasts longer but the surgeon admitted it may not. That’s the nature of shunts. They malfunction.
This sad news and Finn’s uncharacteristic behavior made us realize today how much our son’s life depends on this device.
Joey’s parents came down from Tulsa to hold our hands. My parents were dying to be here too.
He’s sleeping now. Please pray for quick recovery, no subsequent infection and a much longer length of time until next revision.
Scary, hard day. Oh, and it’s Joey’s 30th birthday. Sorry, babe. We’ll celebrate another day.