…that’s never how you want the doctor to begin their sentence. It seems we’ve heard a lot of these “Unfortunately’s…” in the past couple years and I know this isn’t our last.
Finn had his one year MRI two weeks ago. Last week I got the call from our neurosurgeon that “unfortunately” it wasn’t good. Finn has a syrinx in his spinal cord. Basically, too much spinal fluid. There are a few causes of this:
- Shunt malfunction
- Chiari malformation issues (boring, long explanation of what this is but basically Finn’s brain is shaped differently than ours due to fluid pressure in the womb and it may not be allowing his spine to drain properly).
- Tethered cord (another boring explanation but this is when scar tissue from his spinal closure surgery chokes out the nerves in his spine and causes him to lose function, sometimes causing worse damage than he was born with).
Because Finn had such a recent shunt malfunction at the end of January, they are hoping the syrinx is due to excess fluid from the malfunction. It takes a while for it to recede.
We will repeat the MRI in six months. If it’s the same or worse, Finn will need surgery on one of the three options above, starting with “exploring” the shunt surgically to be sure all is working properly. Each surgery would be serious and can (as always) have major bummer side-effects.
So, we are sad. We can’t be sad for six months though, and being with Finn always makes us feel better. He’s been so happy lately, and for that we are grateful.
Please pray with us:
- for healing of Finn’s spine. Nothing broken. Nothing missing.
- that the fluid would recede and return to normal.
- that the corpus collosum (part of his brain) would “reappear” in its entirety. MRI showed it is only half present.
- that Finn’s shunt would work properly. It keeps him alive. We need it to work!
- that we would not entertain fear or anger.
- that the doctors/surgeons would be wise and accurate.
- for healing of all children. Two other friends are struggling with terrible news from doctors for their little ones: one with a chest mass and one with leukemia. I’m sure you have some stories of your own. He asks the little children to come to Him in Matthew 19. Pray that when they go to Him, they are healed spiritually and physically.